In 2022, the AASM Foundation launched a new partnership with Hypersomnia Foundation (HF) based on the common goal: promote the research and discovery of new ways to improve the lives of people with sleep disorders.
The foundations partnered together to support novel hypersomnolence research through the AASM Foundation’s Strategic Research Grant which provides grants up to $250,000. This was the first time that the AASM Foundation had partnered with a patient advocacy organization by including their priorities and feedback as part of the grant review process which resulted in Margaret Blattner, MD, PhD, receiving funding for the project: A Novel Protocol for Understanding and Diagnosing Idiopathic Hypersomnia.
After piloting the partnership with HF, the AASM Foundation was excited to include Wake Up Narcolepsy (WUN) as an additional collaborative partner that would help expand our research investment helping people with narcolepsy.
Nisha Aurora, MD, MHS, President, AASM Foundation, had this to say about the collaboration with Wake Up Narcolepsy; “Collaborating with organizations like Wake Up Narcolepsy can really help advance research in sleep medicine. It’s encouraging to see funding being directed toward important projects that address gaps in sleep medicine.”
The AASM Foundation with additional support from our partners has now awarded more than $1.7 million grant funding for projects addressing central disorders of hypersomnolence since 2022. We are also delighted to announce the following projects that just awarded:
Thien Than Vang-Du, MD, PhD, CRIUGM, CIUSSS Centre-Sud-de-l’île-de-Montréal
Using Global Mega-Analysis of Brain Morphometry to Identify Neural Mechanisms and New Diagnostic Biomarkers Associated with Central Disorders of Hypersomnolence
Oliver Sum-Ping, MD, Stanford University
Using Machine Learning Analysis of Awake EEG to Identify Electrodiagnostic Correlates of Hypersomnolence
Aaron Schokman, Bsc, Mphil, PhD, The University of Sydney
Co-Production and Psychometric Validation of a Patient Reported Outcome Measure of the Impact Narcolepsy has on the Daily Life of Adult Persons Living with Narcolepsy Type 1 and 2
Margaret Blattner, MD, PhD, Harvard Medical School/Boston Children’s Hospital
Mechanisms of Long Sleep Duration in Idiopathic Hypersomnia (IH)
As we enter the season of giving, we would like to thank the HF and WUN for their funding and collaborative support of our Strategic Research Grant.
